CAPPS creates awareness, supports families

by PJ Mullen on April 19, 2010

in April 2010 Nominees, Spread Your Warmth

We’re off to a little bit of a late start for today, but we are pleased to bring you the latest nominee in the Spread Your Warmth campaign. CAPPS, which stands for Craniosynostosis and Positional Plagiocephaly Support, was introduced to us by Jaime at the blog I Have A Coupon For That.

CAPPS got it’s start in 1999 as the national non-profit organization Craniosynostosis And Parent Support, Inc.. It was established by a mother whose child had craniosynostosis to offer support and information to other families who had a child with craniosynostosis. A year later they determined there was a need to support families with children that had Positional Plagiocephaly and named themselves CAPPS in 2001.

CAPPS describes their goal as:

to raise awareness through education. Although these two conditions are very different in cause, in many cases they have a similar outward appearance, which causes many mis-diagnoses. By educating the HealthCare community and general public, we will be able to reduce the amount of mis-diagnoses and children will get the appropriate treatment for their condition without losing valuable time. It is imperative that parents know the symptoms and signs of both disorders so that infants can obtain treatment without delay. Positional Plagiocephaly, is most often a preventable condition, therefore parents and childcare providers need to know what steps to take in order to prevent this condition from occurring.

Craniosynostosis is a condition in which one or more of the fibrous sutures in an infant skull prematurely fuses. This results in restricted skull and brain growth. Because the brain cannot expand in the direction of the fused suture, it is forced to grow in the direction of the open sutures, often resulting in an abnormal head shape and facial features. Some cases of craniosynostosis may result in increased pressure on the brain and developmental delays.

A separate cause of abnormal head shape is positional plagiocephaly— flattened or misshapen areas on the head that may develop due to sleeping position. While the appearance may look rather similar to craniosynostosis, the distinction is important. Positional plagiocephaly does not require surgery and treatment can be as simple as occasionally repositioning the child’s head while sleeping or, in some cases, wearing a cranial band to mold the skull.

Thank you to Jaime for nominating the CAPPS for the Spread Your Warmth campaign. If you would like to learn more about CAPPS, their mission or to make a donation, visit their website.

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